My son lost the ability to point, wave, blow kisses and speak at 17.5 months after receiving an antibiotic injection for a 104.7 temperature. He lost eye contact for 24 hours and started having tantrums. Because I had a five year old daughter, I knew his symptoms were not typical of a normal illness. I was determined not to let my son slip away. When my son’s severe neurological symptoms started I stayed up all night researching on the internet the symptoms I was observing. Then I put him on the gluten free casein free diet and watched him get better.
It turns out six months of worsening diarrhea and illness had destroyed his gut flora and the antibiotic injection wiped it out completely. Changing his diet and giving him probiotics and enzymes has turned him from a perpetually sick boy with a verbal processing delay and red cheeks and a blistering diaper rash to a perpetually healthy bright talkative boy without any developmental problems (that we know about :).)
This blog is our story of his recovery and how other people in our family also got better through dietary intervention.
At 11 months, my son started projectile vomiting, I thought it was a stomach virus. Days later it was a strange blistery diaper rash that wouldn’t heal. At the same time, he developed a cold and cough that never went away. An ear infection, then another cold. Then another blistery diaper rash. The whole time he never napped for more than 1/2 an hour or 45 minutes during the day and he still didn’t sleep through the night. And his diapers smelled worse and worse. When he was on milk, he was severely constipated, when he wasn’t on milk he had diarrhea.
At 15 months I consulted two allergists and a GI doctor about what I thought was a milk allergy. They told me he wasn’t allergic to milk and there was nothing wrong. At 17 months I told my husband to bring my son’s dirty diaper into the pediatrician because something was wrong with it. Then he got a high fever which led to the antibiotic injection and subsequent personality change.
I put him on the gluten free, casein free immediately and told my doctor that I needed to see a GI doctor because I suspected his developmental issues were driven by the months of worsening diarrhea. I have consulted many doctors about his illness and recovery. In the process I have acquired a huge amount of information on celiac disease, food intolerances and nutrition.
It turns out my son and my daughter both have two genes (DQ2/DQ8) for celiac disease and all the symptoms of celiac which resolve on a gluten free diet.
I say I turned heaven and earth to get my son better and it worked. The most important thing I would like to share with parents is that the gluten free, casein free AND SOY FREE diet works. It doesn’t work for everyone, but it worked for us. It saved my son’s life. He went from no words, no mama no dada at 18 months to “Mom, I am a musician…What is a musician?” at 3 years old.
More Red Cheeks and Testing Results